Raedyn lives with a facial difference that is caused by Pfeiffer syndrome. His brother, Julian, is his best friend. Julian believes that Raedyn is "just perfect in every way". Together the two are growing up and learning the value of having a brother who will always be there for you. | Special Books by Special Kids

Have you ever heard of Pfeiffer Syndrome? Well 2.5 years ago I hadn’t either. Then my son was born.. and after genetic testing we found that the FRGR2 gene was mutated, causing him to be born with Pfeiffer Syndrome. This syndrome caused differences from head to two, mostly affecting his bone growth. He has underwent several brain, and skull surgeries along with a life saving Tracheostomy placement. Raedyn’s life has not been easy, and it is far from average.. but it is not less than anyone else’

Pfeiffer syndrome is a rare genetic disorder characterized by craniosynostosis—premature fusion of the skull bones—present during pregnancy. This condition causes deformities of the head and face, prominent eyes, and short, wide thumbs and toes. This disorder often involves mutations in the FGFR1 or FGFR2 genes. #geneticdisorders #babylove #babycare #nicucare #newbornbaby #babyworld | Yuli Ismalia